Six Key Approaches in Open Society Foundations' Support for Global Palliative Care Development

J Pain Symptom Manage. 2023 Jan;65(1):47-57. doi: 10.1016/j.jpainsymman.2022.08.020. Epub 2022 Sep 2.

Abstract

Context: Between 1998 and 2021, the Open Society Foundations (OSF) network invested around US$50 million in supporting the emerging field of palliative care worldwide, funding different approaches and interventions to advance its objective of putting palliative care on the global public health agenda.

Objective: To describe six approaches that were instrumental to the successes of Open Society Foundations' support in building the global field of palliative care. A robust discussion of lessons learnt is unfortunately not possible because Open Society Foundations did not commission a rigorous evaluation of the impacts of its investments.

Methods: This article describes these six approaches: Investing in versatile palliative care leaders at national and regional level; investing in palliative care champions within the OSF network; proactively engaging the World Health Organization (WHO) in efforts to promote palliative care; developing tools and skills to improve palliative care financing; using a human rights-based approach; and supporting self-advocacy by people with palliative care needs.

Results: Deep, long-term investments in national and regional champions from the palliative care community and OSF's own network built palliative care leaders with well-rounded skills, knowledge and opportunities to develop their own networks. The active engagement and involvement of the WHO in efforts to advance palliative care enhanced the credibility of palliative care as a discipline as well its champions, whereas the human rights approach resulted in more diverse strategies to overcome barriers to palliative care. The focus on palliative care financing and self-advocacy showed significant promise for impact.

Discussion: The approaches and strategies described helped a nascent palliative care field develop into a health service that is increasingly integrated into public health systems. Other funders and national governments can build on OSF's long term support for the palliative care field and support further integration of palliative care within public health to increase access.

Keywords: Champions; Health financing; Health systems; Hospice; Human rights; Leadership development; Networks; Palliative care; Philanthropy; Public health; Self-advocacy; World Health Organization.

MeSH terms

  • Hospice and Palliative Care Nursing*
  • Human Rights
  • Humans
  • Palliative Care* / methods
  • Social Networking